Living with pulmonary alveolar proteinosis (PAP) presents unique challenges for patients, impacting various aspects of their lives, including physical health, emotional well-being and social interactions. This review explores patient perspectives on the experience of living with PAP and examines coping strategies employed to navigate the challenges associated with this rare lung disorder. By shedding light on the lived experiences of individuals with PAP and highlighting effective coping mechanisms, this article aims to provide insights that can support patients, caregivers and healthcare providers in optimizing the quality of life for those affected by PAP.
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