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Journal of Oncology Translational Research

ISSN: 2476-2261

Open Access

Post haplo-identical stem cell transplant for sickle cell disease: Parents�?? experiences and challenges in caregiving

Abstract

Moses Kayongo and Rhoda N Kayongo

Introduction:

Haplo Identical Stem Cell Transplant (SCT) procedure in some countries is still considered experimental and performed only as part of research studies because it presents with a number of complications during and after the transplant, ranging from the high risk for infections, Graft-versus-host disease (GVHD), Graft failure, Nutrition problems, Low blood counts, dermatological challenges, Social and emotional concerns and others. The number of haplo identical SCT procedures nonetheless, continues to rise as parents in many African countries seek treatment for the increasing diagnosis of sickle cell disease among children.

Parents as caregivers for their Post- Haplo identical SCT children are destined to face greater number of challenges with which there is perhaps little research on such shared experiences.

This article intends to further the understanding and knowledge of the care giving aspects through a 2 year care giving experience for a nine year old female child Post Haplo-identical SCT, by a family living in Rwanda.

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