Journal of Nursing & Care

Batool Pouraboli

Publications

• Research Article
  The Burden of Care: Experiences of Parents of Children with Thalassemia
  Author(s): Batool Pouraboli, Heidar Ali Abedi, Abbas Abbaszadeh and Majid KazemiBatool Pouraboli, Heidar Ali Abedi, Abbas Abbaszadeh and Majid Kazemi
  
  Introduction: Parents who care for Thalassemia children tolerate a great burden. Understanding these sufferings seems necessary in order to provide appropriate care. This study was aimed to explore the experiences of parents who have children with thalassemia. Method: A qualitative approach was used to obtain rich data. Twenty-two parents were recruited purposefully from one charity clinic in South East of Iran. Semi-structured interviews were used. Data were analyzed by Lundman and Granheim's content analysis method. Results: Data analysis led to form one main theme including “Parents’ Burden of care”. Within this theme the following categories created: immersion in suffering, stigma and social death, uncertainty about future, and absence of a support network. Conclusion: The findings of this study showed that Caring for children with thalassemia have a significant .. Read More»
  DOI: 10.4172/2167-1168.1000389

  Abstract PDF