Children's Hospital Los Angeles,
Los Angeles, California
Tanzania
Research Article
Sibling Caregivers: A Mixed Methods Study and Family-Based Intervention Model in a Pediatric Hospital
Author(s): Raymen Rammy Assaf, Sharon M Hudon, Stephanie Marcy, Linda Radbill, Alex Van Speybroeck, Connie Siskowski and Mona PatelRaymen Rammy Assaf, Sharon M Hudon, Stephanie Marcy, Linda Radbill, Alex Van Speybroeck, Connie Siskowski and Mona Patel
Background: Caregiving youth are minors providing significant assistance to relatives or household members who have chronic physical or mental illnesses and disabilities, yet in the US are relatively under supported.
Objective: We sought to introduce a hospital-based model for screening, referral, and intervention among a population of children who care for siblings with chronic and often complex medical conditions.
Methods: A descriptive, quantitative analysis was followed by a two-phase intervention (focus group and caregiver workshop) utilizing qualitative analysis in an academic children's hospital. Screening sites included the inpatient complex care team and three outpatient clinics.
Results: Sibling caregivers (N=21) spent an average of 2 hours a day on weekdays and 4 hours a da.. Read More»
DOI:
10.4172/2380-5439.1000283
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